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Woman with one-in-a-million condition born without collarbones

Ali Condon

Published 
| Last updated 

Woman with one-in-a-million condition born without collarbones

Featured Image Credit: Caters Clips

A woman has opened up about her on-in-a-million condition that left her born without collarbones.

Danielle Lewis, 33, from Straffordshire has cleidocranial dysplasia - rare genetic condition that can affect the teeth, skull, spine, collarbones, and legs.

Because she wasn't born with collarbones, Danielle has a weird and wonderful 'party trick' where she can touch her shoulders together.

Check it out for yourself:

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"There are only 17 families in the world that have this gene and we all meet up once a year", she said.

"My family knew as soon as I was born that I had cleidocranial dysplasia and as well as being born without collar bones, it's also affected my height - I'm only 4ft 11 - as well as causing joint pain, a prominent forehead, and short limbs."

Despite being so rare, Danielle's condition became more widely known in recent years thanks to the success of Netflix's Stranger Things.

In the hit series, Dustin Henderson, played by Gaten Matarazzo, also has cleidocranial dysplasia and openly discusses the condition with his pals - when they're not busy fighting off nightmare-ish demogorgons.

Like actor Gaten, Danielle's lack of collarbones means that she can bring her shoulders to meet in the middle - something that she's been able to do since she was a child.

Danielle was born with cleidocranial dysplasia. Credit: Caters Clips
Danielle was born with cleidocranial dysplasia. Credit: Caters Clips

"Being able to touch my shoulders together in front of my body is certainly my party trick and first realised I was able to do it when I was younger," she said.

"I was laying on my side and my shoulders were touching. My friend pointed it out to me and couldn't believe it. I just thought everyone could do it."

The mum's genetic condition has been passed on to her three children Ruby Angel, 13, Lily Grace, 12, and Max Thomas, six, who can all do the same shoulder trick.

Danielle's 'party trick' gained some traction online when she shared a video of it to TikTok and wound up with 1.4 million views and over 65,000 likes.

Danielle's children all have the same genetic condition. Credit: Caters Clips
Danielle's children all have the same genetic condition. Credit: Caters Clips

Needless to say, people were blown away when they saw what Danielle could do, and took to the comments to rave about it.

"That's incredible", wrote one user, while a second commented: "Now THAT is a party trick."

Others admitted that they had tried out the same trick, but obviously failed - what with the collarbones.

"Why did I try and see if I could do this," asked one viewer.

"I’ve just tried to do it, I would like to confirm I have collar bones," added another.

"My toxic trait was thinking I could do this," joked a third.

Topics: Health, Life

Ali Condon
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