Ashley Cain has revealed the heartbreaking news that his daughter Azaylia's cancer could spread to her brain.
Ashley, 30, explained doctors have found signs that could indicate the cancer may spread, and are now doing everything they can to stop that from happening, with Azaylia needing further chemotherapy to protect her brain.
Discussing how tough the last few days had been for the family, Ashley explained: "Azaylia had to go into theatre yesterday, for a bone marrow test to read her leukaemia count, plus, a lumber puncture to extract samples to send off to Singapore.
"After that, doctors had to take 60ml of blood from her followed by a four hour blood transfusion. Later, she had chemotherapy with two separate drugs: Azacitidine and the drug we've been working tirelessly to get hold of, Venetoclax.
"That was a tough enough because of Azaylia's pain and discomfort from the multiple procedures. Until we got told by consultants, that they had found blasts of leukemia forming in her Cerebrospinal fluid, which can result in it finding the brain!"
Ashley explained the devastating news now means Azaylia will need another form of chemotherapy to protect her brain.
"With three hours sleep in two days, the reality is that, there are no days off on this journey, no time out periods and no single second without worry or fear," he added.
"If you asked me a year ago, I would've never imagined how strong I could or would have to be. That being said, you never really know how strong you are, until being strong is your only option."
Seven month old Azaylia - who Ashley shares with girlfriend Safiyya Vorajee - was diagnosed with acute myeloid leukaemia (AML), an extremely rare and aggressive form of cancer of the blood and bone marrow, at eight weeks old.
Last week, Ashley told followers that his daughter Azaylia's leukaemia had returned, meaning the only option he had was to fly her out to Singapore to undergo CAR-T therapy - a treatment which involves uprooting from the UK, as it takes a minimum of one year, and required a deposit of £500,000 before they could even begin.
Incredibly, the couple managed to raise £1m to provide the life saving treatment.
"We're absolutely delighted to have raised over one million pounds in less than 24 hours! We are so overwhelmed by the support we have received and cannot begin to express our deep gratitude and thanks to you all," Ashley said.
"There's an old proverb that says 'it takes a village to raise a child' and YOU are our village. Without your kind and generous donations Azaylia would not be able to get the treatment she so desperately needs."
Yesterday, Azaylia's mum Safiyya also spoke about the difficult day ahead, explaining: "We've got a heavy morning today, we are getting a bone marrow test done and then Azaylia needs 60ml of blood taken from her.
"She needs to have a blood transfusion so that they can send the blood over to Singapore.
"...Watching your daughter being put to sleep, again, really pulls another level of heartstrings.
"These days feel so long and tough, but you'd do anything for your child - you don't care about how you are yourself."
Our thoughts are with Ashley, Safiyya and Azaylia at this incredibly difficult time.
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