To make sure you never miss out on your favourite NEW stories, we're happy to send you some reminders
Click 'OK' then 'Allow' to enable notifications
| Last updated
Sophie Hitchen, 24, from Felixstowe, Suffolk, was shocked to find "handfuls" of hair falling away from her head in early April.
She said: "I noticed that clumps started coming out when I was in the shower, or when I was brushing my hair.
"At first I thought nothing of it, thinking it was probably just knots that were falling out.
"But then over the next week or so, I noticed that my clothes were ending up getting absolutely covered in hair.
"I left it another week or so but when it continued to get progressively worse I had a phone appointment with the doctor, who suggested I have some blood tests done."
Sophie's blood tests came back clear - but shortly afterwards, she said her fiance, James Keeble, 35, spotted her first bald patch at the back of her head.
She said: "Up until then I wasn't really able to see where it was falling out from. So I asked him to look, and he found the bald patch."
Sophie returned to the doctor, who sent her away with some lotion for eczema.
But at the end of April, she went to see a specialist scalp doctor (trichologist), who finally diagnosed her with alopecia areata - An autoimmune disorder that often results in unpredictable hair loss.
She said: "After that, it happened really, really rapidly. That's what was so hard about it at first.
"For the first three weeks, I didn't know how to cope. I didn't get out of bed. I couldn't sleep, because I was too afraid of waking up to find more hair on the pillow.
"I had zero control over it. I didn't wash or brush my hair for weeks, because seeing the hair coming out was traumatising. It took over my life."
By the middle of May, she had lost about 90 per cent of her hair - deciding to shave off the rest of her 'wispy strands'.
All of this has been made more unbearable because Sophie's wedding is on the way, in October.
Sophie added that she began to cancel all her wedding dress fittings as she couldn't face continuing with her wedding planning.
And she described going to look round her wedding venue as a "distressing" day - as it was right in the midst of her hair falling out.
She said: "For as long as I can remember, I've wanted to get married at this venue. We booked it without even looking round it, because I wanted it that much.
"But when the day came to go and see it, it was right in the middle of everything happening.
"I pinned my hair back as tight as I could that day, so that I wouldn't have to think about it.
"It should have been the happiest day of my life - but I can't tell you how distressing it was."
When Sophie shaved her hair off in mid-way, with the help of her partner, she said the main emotion she felt was relief.
"I can't even describe what a relief it was. It felt like I was taking back control of what had been controlling me for the previous six weeks," she reflected.
"I'm naturally quite an anxious person, so I'm so proud of myself for somehow managing to take some form of positive out of this."
Sophie is now on a six-week course of oral steroids to try and stop her immune system from attacking her hair.
She is due to return to her dermatologist later this month to discuss the option of continuing with a potentially more effective course of steroid injections directly into her scalp.
"There's no cure for alopecia - it's more about calming my immune system down so I don't lose any more hair from my body," she explained.
She added that her hair loss came "completely out of the blue" - and that the trichologist and dermatologist she saw about it were "clueless" as to what could have caused it.
"Everyone who I have spoken to medically has asked if I have gone through any significant trauma or stress in my life," she went on.
"But I haven't - not to the extent that it would have caused this. There was no trigger for it."
She has recently spent £2,500 having a special hair 'unit' custom-made to fit her head - which is taped to her scalp so that she can sleep in it and even swim in it.
"It's really comfortable," she said. "It was specially fitted for my head, so I can't even really tell it's there.
"It's just going to make life so much easier - I can sleep in it, so I'm able to just get up and go in the mornings without having to worry about putting a wig on.
"It's taken away so much of the worry about how I'm going to feel pretty or how I'm going to feel like myself when it comes to my wedding."
Sophie is fully aware that she's been in a fortunate position to pay for everything privately, but she says she feels sympathy for those who aren't as lucky.
"The NHS can contribute to two wigs a year, but they're not very good wigs," she added.
"Getting help has been a real struggle, and I think there needs to be more done to change that."
She's now speaking out on her condition and is determined to act as a 'role model' for others going through the same.
"I've had so many lovely messages over the last few weeks from other girls or their parents who have said that my posts have really helped them," she said.
"Nobody knows enough about alopecia or what really causes it. I just want to raise as much awareness as possible.
"I found that a lot of girls on social media have helped me get through this over the last couple of months.
"I wanted to be that girl for other people. I don't want anyone to feel like they're going through this alone."
To follow Sophie's alopecia journey, visit her Instagram page here.
Chosen for YouChosen for You
Most Read StoriesMost Read